Let me wish all of you a very Merry Christmas and a healthy New Year 2008.
As I've said to some of my friends a long time ago, I was looking forward to 2008 thinking all of this cancer recovery would be well over. As of December 21, the wound vacuum will be coming off for good. I have had it since Sept. 7th - a mere 3-1/2 months. The wound is closing up about a 1/2 centimeter a week (about 1/4 to 1/8"). I'm trying to get my heel down slowly and lay my foot flat on the ground. After the vacuum is taken off, I might be able to put some weight on it. I'll still have to have some physical therapy to get walking again.
The CT scan that I had two weeks ago was clear. This will be the base scan for future scans that I have to undergo every three months. Soon I'll have an MRI for the same purpose. The oncologist did say that my chances of getting cancer in another part of my body from this incident is very, very slim. That was good to hear.
Good news! Since summer, I have dropped 35 pounds. Not being able to walk or jump up to get those snacks, ice cream not tasting right along with chocolate, is doing me good. When eating meals, my appetite was not great and I ate smaller proportions. I'm trying to get used to the smaller proportions to keep the weight off, but the doctors say my appetite will come back. NO NO NO.
Bad news! Remember when I said how fast my hair came in when they took me off chemo to get ready for surgery, well, this time it's not coming in as fast. Several people have told me (including my hairdresser) that your hair grows slower in the winter months. All I have now after a month is stubble. Hopefully by spring I can toss the wig.
My childhood friend, Ellen, took me shopping at the Cherry Hill Mall last Friday. What I couldn't order online, I was able to get in two hours. Sometimes you just have to see in person some things you want to get. I still have to get some stocking stuffers, but the presents are all wrapped. At least I can do that sitting down!
My next appointment with the surgeon is January 8th. So I'll being talking to you next year. Thank you to my friends and relatives who have read this blog and remind me when I get behind. It is your support and prayers that have kept me going throughout this long ordeal. God Bless.
Monday, December 17, 2007
Saturday, December 1, 2007
December 1, 2007
My gosh folks, I didn't realize how long it has been since I last posted on my blog. A couple of friends commented that I should update it, but I apologize for the lag in posting.
Joyfully the chemotherapy ended November 16th. The week-long chemo was long knowing it was the end. I celebrated with the nurses by giving them Banana Cream Cheesecake from Cheesecake Factory for all their help and friendliness through the 9 months of chemo. I gave small glittery Christmas trees to the two secretaries who greeted me in another section each morning with smiles and "how are you doing today?" with true consideration for my feelings.
Unfortunately the week-long chemo does a number on the iron in my system and by Sunday, I was almost too weak to get from one room to the other. I told Paul I never felt so weak. He remembered that on my previous week-long gigs, that I usually required a blood transfusion. I checked back in my diary that I've kept and sure enough, about 10 days later I always had a blood transfusion. The onocologist on my last visit did notice that I was still wearing my coat in his office because I was cold and said the chemo causes me to be anemic. Its now been two weeks since the chemo ended and I'm slowly getting my energy back.
Good news! Hair is starting to peak its way through my head. I had an itchiness on my head the other week and felt some stubble. Paul checked it out and said it was hair. I started to cry since this time it wasn't going back and we were headed in a positive direction for once. I might even have a crewcut by Christmas.
The surgeon had said the wound should start moving since by the third week when hair started coming in. The nurses who come to change the wound vacuum every other day see the skin around the would curling up a little bit to move over the wound. I see the surgeon this Thursday to debreed (or clean out) the wound. Lately it hasn't been as painful since I've learned to take a pain killer an hour before the appointment. Hopefully by Christmas we might see an improvement to decide when the vacuum should come off.
I was looking forward to my Thanksgiving dinner to be able to actually taste the turkey (as I told all the doctors and nurses when looking forward to the end of my chemo). I was able to taste it all right, but my taste buds for the other foods and energy level were not back to normal yet. We had dinner at my sister-in-law's with Paul's sisters and nieces and nephews, about 20 in all. I had made pumpkin pies and a chocolate mousse pie earlier in the morning with Lisa's help. I removed the vac myself in the shower that morning before the nurse came to put on a new one. One time one of the visiting nurses put a little water on it and then pulled it off. @!#%* I said. So now I remove it myself by fully wetting the sponge and slowly pulling it off with little or no pain on my part. Just to get in and out of the car was a major work for me that day. I guess the turkey hormones or my energy made me more lethargic after dinner, so I got myself to the couch and collapsed until it was time for us to go home. Normally I would be up cleaning the table and talking to the family, but I didn't even have energy to do that.
So now its here. The dreaded beginning of the Christmas season. I did cyber shopping on Monday and took advantage of the free shipping on some of the sites. I had ordered Ugg boots for the girls, checked to make sure I got the sizes and colors and styles right before Thanksgiving. They came and sure enough, the girls said they didn't fit. Lisa said her's was the wrong style and Lauren said she told me 7's instead of 8. So now Lauren's won't be in until after Christmas. Had to send them back. These girls won't slow down long enough to pay attention to the particular's. Mike wanted the Rock Guitar game and kept telling me all the different places that had it, but I said they're probably out of stock. He did find it somewhere and I told him to order it. My children get one big gift and then smaller less expensive gifts for Christmas. I hope someone will take me to one mall or Walmart before Christmas to get the stocking stuff.
Paul is keeping me company for awhile as he had a hernia operation on Nov. 26. While Michael is at school, the house is quiet as he wants reading time. I've begun reading "One More Day" by Mitch Albom before the TV movie airs December 9th. He's able to slowly move around. Those of you who know Paul, know that he's not one to sit very long. This is killing him. By the end of the night he's tired of the chair, but does like to watch the world go by when he's next to the window. He watches the trashmen, the leaf cleaners, neighbors and the homeless delivering the circulars. He's keeping the kitchen much cleaner than I usually do. (If he's up, he keeps going till he has to sit or I have the TV on.) I give him stars for keeping the living room clean for the nurses especially after the mail comes with all the Christmas catalogs coming lately.
Well this blog has gone on far too long. I hope everyone had a good and sleepy Thanksgiving and are rearing up for shopping for Christmas. It will be much cheaper for me this year since I can't get out and buy up little things to surprise my family. I'm doing a lot of gift cards as our church is selling them as a fundraiser.
Thank you to Karen and Mary for taking me to lunch to get me out of the house and the various friends who have called to see how I am doing. I went through all the cards that people have sent me since my "Road to Recovery" began. The signs of hope and prayers from all my friends has truly helped me get through this and will continue to the end. God has blessed me with your friendship.
Now to shopping on the internet. HO HO HO
Betsy
Joyfully the chemotherapy ended November 16th. The week-long chemo was long knowing it was the end. I celebrated with the nurses by giving them Banana Cream Cheesecake from Cheesecake Factory for all their help and friendliness through the 9 months of chemo. I gave small glittery Christmas trees to the two secretaries who greeted me in another section each morning with smiles and "how are you doing today?" with true consideration for my feelings.
Unfortunately the week-long chemo does a number on the iron in my system and by Sunday, I was almost too weak to get from one room to the other. I told Paul I never felt so weak. He remembered that on my previous week-long gigs, that I usually required a blood transfusion. I checked back in my diary that I've kept and sure enough, about 10 days later I always had a blood transfusion. The onocologist on my last visit did notice that I was still wearing my coat in his office because I was cold and said the chemo causes me to be anemic. Its now been two weeks since the chemo ended and I'm slowly getting my energy back.
Good news! Hair is starting to peak its way through my head. I had an itchiness on my head the other week and felt some stubble. Paul checked it out and said it was hair. I started to cry since this time it wasn't going back and we were headed in a positive direction for once. I might even have a crewcut by Christmas.
The surgeon had said the wound should start moving since by the third week when hair started coming in. The nurses who come to change the wound vacuum every other day see the skin around the would curling up a little bit to move over the wound. I see the surgeon this Thursday to debreed (or clean out) the wound. Lately it hasn't been as painful since I've learned to take a pain killer an hour before the appointment. Hopefully by Christmas we might see an improvement to decide when the vacuum should come off.
I was looking forward to my Thanksgiving dinner to be able to actually taste the turkey (as I told all the doctors and nurses when looking forward to the end of my chemo). I was able to taste it all right, but my taste buds for the other foods and energy level were not back to normal yet. We had dinner at my sister-in-law's with Paul's sisters and nieces and nephews, about 20 in all. I had made pumpkin pies and a chocolate mousse pie earlier in the morning with Lisa's help. I removed the vac myself in the shower that morning before the nurse came to put on a new one. One time one of the visiting nurses put a little water on it and then pulled it off. @!#%* I said. So now I remove it myself by fully wetting the sponge and slowly pulling it off with little or no pain on my part. Just to get in and out of the car was a major work for me that day. I guess the turkey hormones or my energy made me more lethargic after dinner, so I got myself to the couch and collapsed until it was time for us to go home. Normally I would be up cleaning the table and talking to the family, but I didn't even have energy to do that.
So now its here. The dreaded beginning of the Christmas season. I did cyber shopping on Monday and took advantage of the free shipping on some of the sites. I had ordered Ugg boots for the girls, checked to make sure I got the sizes and colors and styles right before Thanksgiving. They came and sure enough, the girls said they didn't fit. Lisa said her's was the wrong style and Lauren said she told me 7's instead of 8. So now Lauren's won't be in until after Christmas. Had to send them back. These girls won't slow down long enough to pay attention to the particular's. Mike wanted the Rock Guitar game and kept telling me all the different places that had it, but I said they're probably out of stock. He did find it somewhere and I told him to order it. My children get one big gift and then smaller less expensive gifts for Christmas. I hope someone will take me to one mall or Walmart before Christmas to get the stocking stuff.
Paul is keeping me company for awhile as he had a hernia operation on Nov. 26. While Michael is at school, the house is quiet as he wants reading time. I've begun reading "One More Day" by Mitch Albom before the TV movie airs December 9th. He's able to slowly move around. Those of you who know Paul, know that he's not one to sit very long. This is killing him. By the end of the night he's tired of the chair, but does like to watch the world go by when he's next to the window. He watches the trashmen, the leaf cleaners, neighbors and the homeless delivering the circulars. He's keeping the kitchen much cleaner than I usually do. (If he's up, he keeps going till he has to sit or I have the TV on.) I give him stars for keeping the living room clean for the nurses especially after the mail comes with all the Christmas catalogs coming lately.
Well this blog has gone on far too long. I hope everyone had a good and sleepy Thanksgiving and are rearing up for shopping for Christmas. It will be much cheaper for me this year since I can't get out and buy up little things to surprise my family. I'm doing a lot of gift cards as our church is selling them as a fundraiser.
Thank you to Karen and Mary for taking me to lunch to get me out of the house and the various friends who have called to see how I am doing. I went through all the cards that people have sent me since my "Road to Recovery" began. The signs of hope and prayers from all my friends has truly helped me get through this and will continue to the end. God has blessed me with your friendship.
Now to shopping on the internet. HO HO HO
Betsy
Tuesday, October 30, 2007
October 30, 2007
Hello friends,
I saw the surgeon on the 23rd of October. The only good news he had was that after the chemo is done on November 16th, and my hair starts coming in - an indication that the chemicals have gone through my body - that the skin should start covering the new tissue in the wound and closing up. The surgical visits lately have been short and not too painful. This time I didn't even know he was done.
So we continue with the wound vacuum for a while longer. Its been six weeks thus far and I didn't think I'd last this long dragging it around. I'm just getting tired of staying home from work. I've tried crossword puzzles to keep my mind active, knitting to keep my hands active, and calling friends to keep my mouth active.
It looks like this won't be the end of the blog for awhile yet.
Take care everyone. Thanks for the prayers.
Betsy
I saw the surgeon on the 23rd of October. The only good news he had was that after the chemo is done on November 16th, and my hair starts coming in - an indication that the chemicals have gone through my body - that the skin should start covering the new tissue in the wound and closing up. The surgical visits lately have been short and not too painful. This time I didn't even know he was done.
So we continue with the wound vacuum for a while longer. Its been six weeks thus far and I didn't think I'd last this long dragging it around. I'm just getting tired of staying home from work. I've tried crossword puzzles to keep my mind active, knitting to keep my hands active, and calling friends to keep my mouth active.
It looks like this won't be the end of the blog for awhile yet.
Take care everyone. Thanks for the prayers.
Betsy
Sunday, October 14, 2007
October 14, 2007
Good evening everyone.
Things are progressing slowly by my standards, but the nurses say otherwise. The oval shaped wound has changed to a circle which means it's closing in. There seems to be a little less pain on the bottom of my foot than before so I take each little change as a good sign. When I remove the vacuum myself in the shower, it's now bleeding which indicates new tissue is filling in. The nurses are happy with the color of the wound. Each little change, i. e. less pain, able to leave my foot on the floor for longer periods of time, moving my toes is a big step for me.
I was able to take the vacuum off when I took a group of seniors to Smithville on Thursday, Oct. 11. At first the weather was pleasantly warm. When we went in to have lunch at the Smithville Inn, the rains came. After lunch we went back to shopping to find the temperature had dropped dramatically after the rain. My brother Denny (who's now retired) assisted me in the wheelchair. It was a good day away from my living room setting.
I have chemo tomorrow for one day. My next chemo is scheduled for Nov. 12 for 5 days and hopefully will be the end of it.
So things are changing for the good.
My friends at St. Rose have started to cook for our family two days a week, which is a blessing as with the colder weather setting in has kept Paul a little busier to make sure people's heaters are ready for start-up. So thank you to my friends Sue and Kathy for last week's dinners and desserts.
Keep up those prayers. They will get me back to First Presbyterian before you know it.
Betsy
Things are progressing slowly by my standards, but the nurses say otherwise. The oval shaped wound has changed to a circle which means it's closing in. There seems to be a little less pain on the bottom of my foot than before so I take each little change as a good sign. When I remove the vacuum myself in the shower, it's now bleeding which indicates new tissue is filling in. The nurses are happy with the color of the wound. Each little change, i. e. less pain, able to leave my foot on the floor for longer periods of time, moving my toes is a big step for me.
I was able to take the vacuum off when I took a group of seniors to Smithville on Thursday, Oct. 11. At first the weather was pleasantly warm. When we went in to have lunch at the Smithville Inn, the rains came. After lunch we went back to shopping to find the temperature had dropped dramatically after the rain. My brother Denny (who's now retired) assisted me in the wheelchair. It was a good day away from my living room setting.
I have chemo tomorrow for one day. My next chemo is scheduled for Nov. 12 for 5 days and hopefully will be the end of it.
So things are changing for the good.
My friends at St. Rose have started to cook for our family two days a week, which is a blessing as with the colder weather setting in has kept Paul a little busier to make sure people's heaters are ready for start-up. So thank you to my friends Sue and Kathy for last week's dinners and desserts.
Keep up those prayers. They will get me back to First Presbyterian before you know it.
Betsy
Saturday, September 29, 2007
September 29, 2007
This will be a short blog as I'm expecting the nurse to show up to change the wound vacuum dressing.
The wound is getting smaller by centimeters. The nurses come every other day. I'm trying to put more of my foot down when I use the walker, but the taping prevents actual bending of the ankle occasionally. The numb feeling near my baby toe that I had right after the surgery, is slowly coming back. The tingling I feel in the sole of my foot means that the nerves are coming back, also. The machine is my constant companion. We have been out to dinner with a co-worker and her spouse, to my brother's retirement dinner, birthday lunch with friends, and doctor's appointments.
I've given up on expecting when to go back to work. I was putting pressure on myself as I so desperately wanted to get back in the swing of things. Even though we got cable (finally) when I came home from the hospital, I still get tired of seeing the same things. I have been doing some work for my sister-in-law who does banners, but you can't do that all day.
There is good news. After seeing my oncologist on Monday, September 24 for another one day treatment, he told me that I only have one 1 day treatment left and only 1 one week treatment left instead of the two as he originally told me. So as my calculations go, my last week of treatment should be Nov. 12-16. Hopefully I can taste the turkey on Thanksgiving. At least there will be an end to something.
Until next time, thank you to Carol, Linda & Mary for lunch, Anna Marie for the tea and visit, and Judy for the visit and communion. Your friendships have gotten me through more than you know. I am truly blessed.
Betsy
The wound is getting smaller by centimeters. The nurses come every other day. I'm trying to put more of my foot down when I use the walker, but the taping prevents actual bending of the ankle occasionally. The numb feeling near my baby toe that I had right after the surgery, is slowly coming back. The tingling I feel in the sole of my foot means that the nerves are coming back, also. The machine is my constant companion. We have been out to dinner with a co-worker and her spouse, to my brother's retirement dinner, birthday lunch with friends, and doctor's appointments.
I've given up on expecting when to go back to work. I was putting pressure on myself as I so desperately wanted to get back in the swing of things. Even though we got cable (finally) when I came home from the hospital, I still get tired of seeing the same things. I have been doing some work for my sister-in-law who does banners, but you can't do that all day.
There is good news. After seeing my oncologist on Monday, September 24 for another one day treatment, he told me that I only have one 1 day treatment left and only 1 one week treatment left instead of the two as he originally told me. So as my calculations go, my last week of treatment should be Nov. 12-16. Hopefully I can taste the turkey on Thanksgiving. At least there will be an end to something.
Until next time, thank you to Carol, Linda & Mary for lunch, Anna Marie for the tea and visit, and Judy for the visit and communion. Your friendships have gotten me through more than you know. I am truly blessed.
Betsy
Monday, September 10, 2007
September 10, 2007
I'm sorry that I haven't added to the blog in awhile. The cruise was fine, but I was frustrated over my lack of independence. I was in a wheelchair the whole time and having to be lifted and pushed everywhere was not my idea of a vacation. We had to board a bus to get to the ship and then be lifted onto the ship. I just don't know how these senior citizens in wheelchairs do it. The food was wonderful and the family times at the dinner table were great. The kids had a ball in Hamilton one night, but for me it was not handicapped accessible (we tried). My daughter, Lauren, did say that the beautiful turquoise waters of Bermuda were better than the green carpet in my home. The weather was quite pleasant as well.
After arriving home we headed straight to the doctor's as I thought I had some kind of infection. The doctor put me on antibiotics to be on the safe side, but really didn't think so. The redness around the wound had increased at the end of the cruise which was one of the signs of an infection. The following Monday I went to the surgeon's office and saw his associate as my surgeon was on vacation. He indicated that this is a "radiated wound" (one that still had some radiation in there), but it looked clean.
A week later I had another appointment with my surgeon. Unfortunately, the skin graft didn't work out and he was peeling dead skin off and around the wound. Another action would have to be taken. Last Friday I had a wound vacuum attached to the wound. This is a sponge over the wound and then a small vacuum is attached to that to "suck" out the blood and liquids to bring to the surface the good stuff to make the wound heal faster. This is on 24/7 and it makes a small burping sound. The unit weighs 3 lbs. I don't know how long this will stay with me, but my visiting nurse today said she already saw an improvement.
August 24 I had one day of chemo. The usual problems occurred as much as the first time, but I knew a little better how to ward off further problems. I go for the next chemo treatment Sept. 24. The onocologist told me I have 1 more one day treatment after this and two more one week treatments. My thoughts are that I won't be finished chemo until near Thanksgiving.
In a way I'm glad they didn't tell me how long this treatment would last. I probably read it on the internet, but put it out of my mind. I thought that I would be going back to work in September but wasn't expecting the visiting nurse 3 times a week when the skin graft didn't take. My wonderful boss says he's holding the job open for me. Everyone in the congregation is looking forward to my return. I am looking forward to closing out 2007 and putting this all behind me.
Until next time, thanks for the prayers and phone calls. God Bless.
After arriving home we headed straight to the doctor's as I thought I had some kind of infection. The doctor put me on antibiotics to be on the safe side, but really didn't think so. The redness around the wound had increased at the end of the cruise which was one of the signs of an infection. The following Monday I went to the surgeon's office and saw his associate as my surgeon was on vacation. He indicated that this is a "radiated wound" (one that still had some radiation in there), but it looked clean.
A week later I had another appointment with my surgeon. Unfortunately, the skin graft didn't work out and he was peeling dead skin off and around the wound. Another action would have to be taken. Last Friday I had a wound vacuum attached to the wound. This is a sponge over the wound and then a small vacuum is attached to that to "suck" out the blood and liquids to bring to the surface the good stuff to make the wound heal faster. This is on 24/7 and it makes a small burping sound. The unit weighs 3 lbs. I don't know how long this will stay with me, but my visiting nurse today said she already saw an improvement.
August 24 I had one day of chemo. The usual problems occurred as much as the first time, but I knew a little better how to ward off further problems. I go for the next chemo treatment Sept. 24. The onocologist told me I have 1 more one day treatment after this and two more one week treatments. My thoughts are that I won't be finished chemo until near Thanksgiving.
In a way I'm glad they didn't tell me how long this treatment would last. I probably read it on the internet, but put it out of my mind. I thought that I would be going back to work in September but wasn't expecting the visiting nurse 3 times a week when the skin graft didn't take. My wonderful boss says he's holding the job open for me. Everyone in the congregation is looking forward to my return. I am looking forward to closing out 2007 and putting this all behind me.
Until next time, thanks for the prayers and phone calls. God Bless.
Saturday, August 4, 2007
August 4, 2007
Hello to my friends.
The surgery was successful in that they removed all of the tumor. I was in the hospital 5 days and came home last Friday. What a feat that was to get into the house. I had this heavy cast on the foot. Paul and Michael helped me up the back steps on my rump. Then we had to get from the floor to the wheelchair. Never again. Paul & Mike have been wheeling me from chair to the bathroom and bedroom for the past week. I did the walker a few times, but not far.
After pathological examination, the tumor was 99% dead, which in layman's terms, was considered excellent. I responded exceptionally well to the chemo and radiation used to destroy the tumor. Most of the time the doctor said they see only 80-90% of the tumor destroyed by chemo. I've been an exception all along!
As I sit here in a wheelchair at the computer, the foot is healing well. The nurses who come into my home to change the dressings 3 times a week, say the area where the surgery was is "looking good". (To me with all the staples and the area in general looks awful.)There is good color around the area. They did take a skin graft from my thigh (the doctor said I had really good skin) which is giving me more pain that the surgical area. As I do exercises the physical therapist instructed me to do, the tightness on the donor site is lessening. I still can't put weight on the foot, but after my follow-up visit to the surgeon on Thursday, that may be changing. They did give me a walking boot at the hospital for the future. Part of the foot is numb like being asleep, which is normal after the nerve is bumped around getting the tumor out. That too seems to be lessening, but not as fast as I would like.
I will still have to have some preventative chemo after the cruise. The chemo doctor did pay me a visit in the hospital to inform me of this, once every three weeks perhaps, until December. At least I should be able to get back to work.
I told Paul that this New Year's Eve we're really going to celebrate to get rid of 2007 and bring on a healthy 2008. I'm looking forward to that.
So bid me Bon Voyage and thanks for all the cards and phone calls to bring sunshine into my life.
Betsy
The surgery was successful in that they removed all of the tumor. I was in the hospital 5 days and came home last Friday. What a feat that was to get into the house. I had this heavy cast on the foot. Paul and Michael helped me up the back steps on my rump. Then we had to get from the floor to the wheelchair. Never again. Paul & Mike have been wheeling me from chair to the bathroom and bedroom for the past week. I did the walker a few times, but not far.
After pathological examination, the tumor was 99% dead, which in layman's terms, was considered excellent. I responded exceptionally well to the chemo and radiation used to destroy the tumor. Most of the time the doctor said they see only 80-90% of the tumor destroyed by chemo. I've been an exception all along!
As I sit here in a wheelchair at the computer, the foot is healing well. The nurses who come into my home to change the dressings 3 times a week, say the area where the surgery was is "looking good". (To me with all the staples and the area in general looks awful.)There is good color around the area. They did take a skin graft from my thigh (the doctor said I had really good skin) which is giving me more pain that the surgical area. As I do exercises the physical therapist instructed me to do, the tightness on the donor site is lessening. I still can't put weight on the foot, but after my follow-up visit to the surgeon on Thursday, that may be changing. They did give me a walking boot at the hospital for the future. Part of the foot is numb like being asleep, which is normal after the nerve is bumped around getting the tumor out. That too seems to be lessening, but not as fast as I would like.
I will still have to have some preventative chemo after the cruise. The chemo doctor did pay me a visit in the hospital to inform me of this, once every three weeks perhaps, until December. At least I should be able to get back to work.
I told Paul that this New Year's Eve we're really going to celebrate to get rid of 2007 and bring on a healthy 2008. I'm looking forward to that.
So bid me Bon Voyage and thanks for all the cards and phone calls to bring sunshine into my life.
Betsy
Monday, July 16, 2007
July 16, 2007
Good news to report.
I will be going in for surgery on July 23rd to remove the tumor. The orthopedic surgeon has determined that the radiation dramatically reduced the size of the tumor to the point that surgery is now an option. He may have to take some skin from my thigh to cover up the hole he'll make to get the tumor out. He'll be able to save the skin on the bottom of my foot. After the surgery, there may be some preventative chemo I will still have to go through, but we are nearing the end of the treatment.
Of course the surgery scheduled so close to our family cruise on August 12th means that I will be in a wheelchair for the trip. Thank heavens for elevators. The family has assured me that they would rather have me on the trip in a wheelchair, than not go at all. Michael is used to wheeling me around, so this should be smooth sailing.
Oh, the initial ride in the motorized shopping cart was OK. It went faster when I first started to drive it, but then I guess the charge went down and it was more a manageable speed for me. I did run into a cardboard display with watches when I turned a corner. When we finished shopping and drove the cart to the car, Paul went to drive it back into the store and hit the bumper on the car. So he can't criticize me for my driving.
Thanks again to all my friends for your continuing concern for me during this treatment. I enjoy the cards coming in and the luncheon dates as well as the phone calls. I will write again in a couple of weeks.
Take care.
Betsy
I will be going in for surgery on July 23rd to remove the tumor. The orthopedic surgeon has determined that the radiation dramatically reduced the size of the tumor to the point that surgery is now an option. He may have to take some skin from my thigh to cover up the hole he'll make to get the tumor out. He'll be able to save the skin on the bottom of my foot. After the surgery, there may be some preventative chemo I will still have to go through, but we are nearing the end of the treatment.
Of course the surgery scheduled so close to our family cruise on August 12th means that I will be in a wheelchair for the trip. Thank heavens for elevators. The family has assured me that they would rather have me on the trip in a wheelchair, than not go at all. Michael is used to wheeling me around, so this should be smooth sailing.
Oh, the initial ride in the motorized shopping cart was OK. It went faster when I first started to drive it, but then I guess the charge went down and it was more a manageable speed for me. I did run into a cardboard display with watches when I turned a corner. When we finished shopping and drove the cart to the car, Paul went to drive it back into the store and hit the bumper on the car. So he can't criticize me for my driving.
Thanks again to all my friends for your continuing concern for me during this treatment. I enjoy the cards coming in and the luncheon dates as well as the phone calls. I will write again in a couple of weeks.
Take care.
Betsy
Sunday, July 1, 2007
July 1, 2007
Good morning Blog Readers! (say it loud like Robin Williams in "Good Morning Vietnam)
Since I last wrote you, not much has really been happening. I met with my chemo doctor on the 21st of June and he suggested I see my orthopedic surgeon. I met with the surgeon the next day. He was very pleased with the results of the radiation and chemotherapy on my tumor. He felt that he could successfully remove the tumor without losing the skin from the bottom of my foot. He would take a small piece of skin from my thigh to cover the hole on the side of my foot. The surgery would have to wait until the dead skin from the blisters was gone. Sometime in July would be a good time for the surgery.
Unbeknown to me, the pain in the back of my right leg which I thought was a pulled muscle, turned out to be a blood clot. When I went to see my primary physician later on the 21st, she noticed the swelling in my right ankle and calf. She rushed me off to Heights Imaging to verify her suspicions. Sure enough I had one. I was told when you're on chemo, you're more susceptible to these things. I called my chemo doctor who ordered a shot for me at the PA Hosp. emergency room. Paul and I headed over and arrived there at 7:35 pm. I didn't receive the shot until 2:30 a.m. It seems they put my paperwork on the bottom of the pile. They kept apologizing and I was just falling asleep anxious to get out of there. Now I have to have a shot every night until my cumadin level is regulated. I have to have a blood test every Thursday to know when to stop the shots. Luckily, the surgeon says this shouldn't deter the surgery too much.
I thought I was going to be in chemo this past week, but no one called to schedule me. So Mike and I went to the dentist. And I was able to get an updated MRI and CAT scan for the surgeon. So Monday is another week and we'll see what happens.
I'm going to try out one of those electric carts in the grocery store. I'm a little nervous about running into people and my husband telling me how to drive. You know those back seat drivers are the pits.
Have a safe and happy 4th of July.
Since I last wrote you, not much has really been happening. I met with my chemo doctor on the 21st of June and he suggested I see my orthopedic surgeon. I met with the surgeon the next day. He was very pleased with the results of the radiation and chemotherapy on my tumor. He felt that he could successfully remove the tumor without losing the skin from the bottom of my foot. He would take a small piece of skin from my thigh to cover the hole on the side of my foot. The surgery would have to wait until the dead skin from the blisters was gone. Sometime in July would be a good time for the surgery.
Unbeknown to me, the pain in the back of my right leg which I thought was a pulled muscle, turned out to be a blood clot. When I went to see my primary physician later on the 21st, she noticed the swelling in my right ankle and calf. She rushed me off to Heights Imaging to verify her suspicions. Sure enough I had one. I was told when you're on chemo, you're more susceptible to these things. I called my chemo doctor who ordered a shot for me at the PA Hosp. emergency room. Paul and I headed over and arrived there at 7:35 pm. I didn't receive the shot until 2:30 a.m. It seems they put my paperwork on the bottom of the pile. They kept apologizing and I was just falling asleep anxious to get out of there. Now I have to have a shot every night until my cumadin level is regulated. I have to have a blood test every Thursday to know when to stop the shots. Luckily, the surgeon says this shouldn't deter the surgery too much.
I thought I was going to be in chemo this past week, but no one called to schedule me. So Mike and I went to the dentist. And I was able to get an updated MRI and CAT scan for the surgeon. So Monday is another week and we'll see what happens.
I'm going to try out one of those electric carts in the grocery store. I'm a little nervous about running into people and my husband telling me how to drive. You know those back seat drivers are the pits.
Have a safe and happy 4th of July.
Saturday, June 9, 2007
June 9, 2007
Graduation Party Day!!!! Yes we're partying today for Lisa and Michael. With the help of my sister-in-law Lori and my niece, Allie, we managed to get the salads made on Friday and the rest of the house straightened up. Paul put a new ceiling in the bathroom and we changed the color scheme. Lisa made a lot of the food and more than a lot of the mess. Paul weeded the gardens and planted the flowers which I usually plant. The porches (back & front) have been hosed down to rid them of the pollen. SO LETS PARTY.
Tuesday, June 5th I had to get another blood transfusion. But the day was long and I didn't finish the transfusion until 6:00 p.m. having gotten there at 10:30 a.m. It's just a lazy day to watch TV and get a free lunch.
Radiation ended suprisingly on Thursday. The ladies who come in for radiation for breast cancer cheered and Mike and I brought donuts to celebrate. I don't go back to my radiation doctor for a month. According to the doctor, the radiation will continue to shrink the tumor even though I'm not getting daily treatments. The liquid in the blister has re-absorbed back into the skin which is good as it contains a lot of protein. Now I have funky tough skin on the bottom of my foot. Slowly I'm trying to put some weight on it, but its still a little tender. I can walk around with 1 crutch, but like to use 2 for balance.
So this week Mike and I get to sleep in. After the party, the house is clean and maybe I can catch up on my cross-stitching which I haven't felt like doing in eons. The family won't have to cook for a few days which will be good. It will be a nice week. Hope yours will be too.
Tuesday, June 5th I had to get another blood transfusion. But the day was long and I didn't finish the transfusion until 6:00 p.m. having gotten there at 10:30 a.m. It's just a lazy day to watch TV and get a free lunch.
Radiation ended suprisingly on Thursday. The ladies who come in for radiation for breast cancer cheered and Mike and I brought donuts to celebrate. I don't go back to my radiation doctor for a month. According to the doctor, the radiation will continue to shrink the tumor even though I'm not getting daily treatments. The liquid in the blister has re-absorbed back into the skin which is good as it contains a lot of protein. Now I have funky tough skin on the bottom of my foot. Slowly I'm trying to put some weight on it, but its still a little tender. I can walk around with 1 crutch, but like to use 2 for balance.
So this week Mike and I get to sleep in. After the party, the house is clean and maybe I can catch up on my cross-stitching which I haven't felt like doing in eons. The family won't have to cook for a few days which will be good. It will be a nice week. Hope yours will be too.
Sunday, May 27, 2007
May 27, 2007
This week has been a trying one for me. The radiation that I've been receiving has caused blisters on the bottom of my right foot. This was expected but not so painfully. The week before I had a blister the size of a quarter which, as radiation increased day by day, developed into a large one covering the instep of my foot. Not to get real gross, but it became puffy by each treatment. Thus this week, my only recourse was to use the wheelchair to get to and from the car to the radiation treatment. Lisa would drive over and Michael would wheel me into the hospital, listen to the ladies chatting in the waiting room when I got treatment, and wheel me out to the car where Lisa would wait for our call via cell phone to pick me up to avoid parking fees. The one day Mike and I had to park in the parking garage, by the time he wheeled me over to the hospital for radiation and back, he got a full upper body workout going over curbs just pushing his overweight mother to the hospital. No gym workout for him that day!
Since the hospital was closed on Memorial Day and I would receive a 3 day vacation from the radiation, the doctor decided to give me Friday off to give my foot an extra day to heal before the next week of radiation. This has helped with the pain, and the swelling has gone down somewhat, but I still can't put weight on my right foot. All I could do was sit on the loungechair with my foot propped up and watch TV. I missed the whole Rosie fight on "The View" as I was watching "The Price is Right". I can't even watch the right shows.
Here's hoping to a better week of chemo and radiation. I'm anxious to get this radiation over with to be able to walk without crutches again. You don't know how much I envy people walking without problems. Will I get there someday? Hopefully by 2008 I can look back on this year and learn from it, understand why it happened, and take precautions that cancer will not be in my vocabulary for a long time.
Have a good Memorial Day!
Since the hospital was closed on Memorial Day and I would receive a 3 day vacation from the radiation, the doctor decided to give me Friday off to give my foot an extra day to heal before the next week of radiation. This has helped with the pain, and the swelling has gone down somewhat, but I still can't put weight on my right foot. All I could do was sit on the loungechair with my foot propped up and watch TV. I missed the whole Rosie fight on "The View" as I was watching "The Price is Right". I can't even watch the right shows.
Here's hoping to a better week of chemo and radiation. I'm anxious to get this radiation over with to be able to walk without crutches again. You don't know how much I envy people walking without problems. Will I get there someday? Hopefully by 2008 I can look back on this year and learn from it, understand why it happened, and take precautions that cancer will not be in my vocabulary for a long time.
Have a good Memorial Day!
Saturday, May 19, 2007
May 19, 2007
Graduation is over for my middle daughter, Lisa, and we look forward to the next one, Michael, on June 1st. There was an advantage to me being in a wheelchair - we got seats up front and to the side so we could see her clearly get her diploma folder from the dean at Rowan. She actually finished in December, so she already has her diploma to insert into the nice engraved folder that we paid all those years for.
Later after a celebratory lunch at Landmark Restaurant in Glassboro (Lisa's college hangout, "the best hamburgers and fries, Mom"), we departed college city to get ready for Michael's Senior Prom. We met the families and saw "my little baby" all dolled up looking spectacular. After 5 hours sleep, he and his friends ascended on Wildwood for a day of carnival games and rides.
The radiation has started to dry out the skin on the bottom of the foot making it painful to walk flatly on my right foot. We took the wheelchair to the graduation in case the walk was too great. We're glad we did as the stadium for the outside ceremonies and the rec center where her major actually received their diplomas, was more than I could ever think to walk. I was given this salve to put on it, but it caused this burning pain which was unbearable. So I started using aloe and taking Advil a little more frequently. I probably overdid it when I took 48 people on a mural tour in Philadelphia on May 17 and then had lunch at the Moshulu Restaurant which was absolutely wonderful, "worth every penny" people said. I did use my crutches, but stretching the muscle on the bottom of my foot wasn't too keen. Having Michael take me, my friend Karen and her 98 year old mother over directly to the trolley, helped me not having to climb stairs into the bus. He picked us up at the restaurant, too, to come home which served my aching foot well.
The radiologists say I'm over half way done the radiation. I should get about 33 treatments which hopefully will end June 8th. I guess after they see how the radiation has shrunk the tumor, a decision will be made about surgery, at least Paul and I hope so. The girls keep saying that it will be over soon and we just have to keep going. There will be an end point sometime. I guess pain sometimes keeping me from seeing the gold at the end of the rainbow. I've started questioning whether my walking in general will ever be the same. I've been posititive for so long, I don't want to slip now.
I want to leave you with something I read on a church sign on the way to Lisa's graduation that helps me when I'm not moving as fast as the rest of the world. "Persevere - even the snails make it on Noah's Ark."
Have a good weekend everyone.
Later after a celebratory lunch at Landmark Restaurant in Glassboro (Lisa's college hangout, "the best hamburgers and fries, Mom"), we departed college city to get ready for Michael's Senior Prom. We met the families and saw "my little baby" all dolled up looking spectacular. After 5 hours sleep, he and his friends ascended on Wildwood for a day of carnival games and rides.
The radiation has started to dry out the skin on the bottom of the foot making it painful to walk flatly on my right foot. We took the wheelchair to the graduation in case the walk was too great. We're glad we did as the stadium for the outside ceremonies and the rec center where her major actually received their diplomas, was more than I could ever think to walk. I was given this salve to put on it, but it caused this burning pain which was unbearable. So I started using aloe and taking Advil a little more frequently. I probably overdid it when I took 48 people on a mural tour in Philadelphia on May 17 and then had lunch at the Moshulu Restaurant which was absolutely wonderful, "worth every penny" people said. I did use my crutches, but stretching the muscle on the bottom of my foot wasn't too keen. Having Michael take me, my friend Karen and her 98 year old mother over directly to the trolley, helped me not having to climb stairs into the bus. He picked us up at the restaurant, too, to come home which served my aching foot well.
The radiologists say I'm over half way done the radiation. I should get about 33 treatments which hopefully will end June 8th. I guess after they see how the radiation has shrunk the tumor, a decision will be made about surgery, at least Paul and I hope so. The girls keep saying that it will be over soon and we just have to keep going. There will be an end point sometime. I guess pain sometimes keeping me from seeing the gold at the end of the rainbow. I've started questioning whether my walking in general will ever be the same. I've been posititive for so long, I don't want to slip now.
I want to leave you with something I read on a church sign on the way to Lisa's graduation that helps me when I'm not moving as fast as the rest of the world. "Persevere - even the snails make it on Noah's Ark."
Have a good weekend everyone.
Friday, May 4, 2007
May 4, 2007
I haven't written anything in the blog since the week after April 21 was unexciting. The week consisted of just getting shots, Neuprogren, for the white blood cells. I did manage to go to work after getting the shots and thus an unexciting week. Lots of people at church were happy to see me and hear the progress I am making. If you know me well, that you can summarize that I did more talking than work.
The week of April 30 was supposed to be a week of chemo. Did you see the hint there? After meeting with Dr. Hartner, my hemotology doctor, it was determined that my hemoglobins and platelets were too low for chemo. Thus on Tuesday I received a blood transfusion of 2 pints which took over 5 hours after my radiation. Now don't think I'm turning into a vampire. Since the bi-weekly chemo meant to aggressively treat the cancer, it was too hard on my system depleting me of the good red blood cells. Dr. Hartner decided to put me back on the three week cycle of chemo, 1 week on, 2 off. This may or may not extend the treatment.
Good news! The tumor has shrunk about 1/2 inch. I stupidly never asked how big the tumor was with all the information I was bombarded with at the beginning. But it was approximately 5, almost 6 centimeters or almost 2 inches long by 1 and 1/4" wide. It has become softer, which is a good sign, and I can now comfortably walk in my bare feet on the carpeted floor.
I will be taking a leave absence from work from May 20 till September 1st. Prayerfully my treatment will be over and I can resume my work schedule. A college student will answer the phones and greet people for the summer.
With Lisa's graduation from Rowan next Friday and Michael's graduation from Paul VI on June 1st, I will have time to prepare for the graduation party. The pool will be open and the central air conditioning will be working, so I can catch up on organizing my photos (doesn't everyone always say they're going to do that sometime?) and cleaning out my trip files. But I can stop anytime if anyone wants to come visit me AND please do.
Thanks to my sister Susan for the beautiful basket of flowers that arrived at Easter and to Janet S. for the bountiful fruit basket. Thanks also to my Tai Chi class for their constant cards reminding me that when you take a class for relaxation to ease yourself of your problems, that you gain friendships to help you get through your problems.
Enjoy the beautiful weather.
The week of April 30 was supposed to be a week of chemo. Did you see the hint there? After meeting with Dr. Hartner, my hemotology doctor, it was determined that my hemoglobins and platelets were too low for chemo. Thus on Tuesday I received a blood transfusion of 2 pints which took over 5 hours after my radiation. Now don't think I'm turning into a vampire. Since the bi-weekly chemo meant to aggressively treat the cancer, it was too hard on my system depleting me of the good red blood cells. Dr. Hartner decided to put me back on the three week cycle of chemo, 1 week on, 2 off. This may or may not extend the treatment.
Good news! The tumor has shrunk about 1/2 inch. I stupidly never asked how big the tumor was with all the information I was bombarded with at the beginning. But it was approximately 5, almost 6 centimeters or almost 2 inches long by 1 and 1/4" wide. It has become softer, which is a good sign, and I can now comfortably walk in my bare feet on the carpeted floor.
I will be taking a leave absence from work from May 20 till September 1st. Prayerfully my treatment will be over and I can resume my work schedule. A college student will answer the phones and greet people for the summer.
With Lisa's graduation from Rowan next Friday and Michael's graduation from Paul VI on June 1st, I will have time to prepare for the graduation party. The pool will be open and the central air conditioning will be working, so I can catch up on organizing my photos (doesn't everyone always say they're going to do that sometime?) and cleaning out my trip files. But I can stop anytime if anyone wants to come visit me AND please do.
Thanks to my sister Susan for the beautiful basket of flowers that arrived at Easter and to Janet S. for the bountiful fruit basket. Thanks also to my Tai Chi class for their constant cards reminding me that when you take a class for relaxation to ease yourself of your problems, that you gain friendships to help you get through your problems.
Enjoy the beautiful weather.
Saturday, April 21, 2007
April 21, 2007
Finally spring has arrived. The birds woke me up this morning chirping outside my window as the sun bellowed through the glass. It was good to rest in bed after a week of chemo. Since only some chemo drugs can be taken with the radiation, they've changed my schedule to every other week of chemo and radiation until the radiation is done. So this past week I had chemo, then radiation, then chemo & radiation, then radiation, etc.
This week wasn't so bad. The reports the doctor hoped would be ready Monday morning from my CAT scan and MRI were not done. This delayed whether I should have chemo that day and eventually I did, but not till 11:00 a.m. which delayed my prelims for radiation that afternoon at 2:00. So we rescheduled the prelims (making the boot for the radiation) until Wednesday.
The remnants of the Nor'Easter dampened everyone's spirits around the chemo unit. The window seats weren't in great demand as they usually are and people seem a little sullen when no sunshine brightens the room.
The prelims for radiation were simple. I got a "tattoo" on my foot to specifically pinpoint the tumor. They pour this warm liquid in a bag and then mold it around your foot. The radiologist then takes computer images where they are going to shoot the radiation on the foot. All very fascinating and scientific. I am scheduled for radiation starting on Tuesday everyday for 15 minutes, 5 days a week.
I proved to myself that I hadn't forgotten how to drive. With my temporary driver on Senior Class Trip this week, I drove myself into Phila. for my chemo. You're allowed free valet parking for treatments. I am usually tired by the end of the day and its always nice to sit back and not have to pay attention to the traffic. I made sure I had napped before I left so I could be wide awake. Made it home accident-free all three days.
This upcoming week I also have to have shots to up my white blood cells along with the radiation. Another busy week.
Take care everyone and enjoy this beautiful sunshine and warm weather.
This week wasn't so bad. The reports the doctor hoped would be ready Monday morning from my CAT scan and MRI were not done. This delayed whether I should have chemo that day and eventually I did, but not till 11:00 a.m. which delayed my prelims for radiation that afternoon at 2:00. So we rescheduled the prelims (making the boot for the radiation) until Wednesday.
The remnants of the Nor'Easter dampened everyone's spirits around the chemo unit. The window seats weren't in great demand as they usually are and people seem a little sullen when no sunshine brightens the room.
The prelims for radiation were simple. I got a "tattoo" on my foot to specifically pinpoint the tumor. They pour this warm liquid in a bag and then mold it around your foot. The radiologist then takes computer images where they are going to shoot the radiation on the foot. All very fascinating and scientific. I am scheduled for radiation starting on Tuesday everyday for 15 minutes, 5 days a week.
I proved to myself that I hadn't forgotten how to drive. With my temporary driver on Senior Class Trip this week, I drove myself into Phila. for my chemo. You're allowed free valet parking for treatments. I am usually tired by the end of the day and its always nice to sit back and not have to pay attention to the traffic. I made sure I had napped before I left so I could be wide awake. Made it home accident-free all three days.
This upcoming week I also have to have shots to up my white blood cells along with the radiation. Another busy week.
Take care everyone and enjoy this beautiful sunshine and warm weather.
Sunday, April 15, 2007
April 15, 2007
My, I have been a naughty girl. I haven't posted anything for two weeks. The week of April 1-8 was hectic not to any medical reasons, but my Living Stations of the Cross play that I have been co-director of for 9 years was performed 3 times that week. My co-director this year was Michael, whom the 7th and 8th graders rather enjoyed more than me. While I was a little tired from the chemo, he was able to direct the students how to fall, placement on the stage, and to carry Jesus at the end of the play. I did have an assistant mother to help with other things. All went well and we had over 200 people on Good Friday to see the play.
The week of April 9-13 did got go so well. Michael and I went to Phila. for 1 day of chemo on Monday, but my hemoglobins (red blood cells) were way down (too anemic). We waited around for them to decide what to do. No chemo that day. Told me I have to have a blood transfusion on Friday. The doctor also said since the nurses were having trouble accessing my port, that a new one would have to be put in. That was scheduled for Tuesday. Went home, made lunch for Mike and I (he was on Easter vacation), he got a movie for us, and we settled in for the afternoon.
Tuesday Mike and I headed over to PA Hosp. for the port replacement operation. What was suppose to be 1.5 hours turned into 3. And I was supposed to be asleep for the operation, turns out I was awake, only numbed on my right side. Before the operation I asked the nurses, "I'm going to be asleep for this again, right?" "Of course, we're just waiting for the doctor." Well, the doctor came in with a resident or student and started talking. I thought OK any minute now I'm going to sleep. Then I kept hearing him telling the resident what he was doing, but I wasn't in pain. Part way through, I yelled "ouch" and then the doctor said, "Give her 20 cc's more of something" and continued on with the operation. I did feel some of the stitches at the end as he described them to his resident. The nurses in the recovery room were amazed how soon I was awake after the operation. I told them I never went to sleep.
When we came home from the port operation, the message on the machine said I was scheduled for a CAT scan on Wednesday at 4:00. Again Mike and I traveled over the Ben Franklin Bridge to yet another test. Mike laughed at me when I had to drink that chalky barium tasting like bananas, so the nurse let him try it. "That's nasty" was his reply. This test, as some of you know isn't that long; you just have to wait for the barium to stay in your body for an hour. But the bad part about this test, was the three times the nurse tried to put an IV in my arm so she could deliver the "contrast" for the test. Finally, another nurse got it on the 4th try. My veins are bad due to genetics, they tell me. Mike and I were on our way home by 5:45 p.m.
Thursday was a good day. No tests but Paul, Michael and I travelled to Phila. for Michael to accept an award from the prestigious Union League of Philadelphia for an essay contest in which he was one of 2 winners. There was supposed to be a copy of his essay on the podium, but someone forgot, and he had to recite it from memory. Thank heavens I asked him to read it minutes before at home so I could see how fast he was going to read it. When we were in the car, he said he forgot his copy but we didn't go back because the gentleman said it would be on the podium. Well, he got more compliments from students and adults on how well he kept his cool and did it off the cuff. This award came with $250 cash. It was worth the trip.
Friday Lauren and I arose early to get my MRI test at 7:15 a.m. in the morning at PA Hospital. That was an easy test just to lie there and this loud machine do its thing. No problem with the contrast. The technologist got it right the first time.
After this test, I met with the radiation onocologist. Seems the chemo doctor and the orthopedic onocologist feel its the right time to start radiation. So after the prelims are taken care of on Monday after my full day of chemo, I will be starting radiation for 15 minutes a day, 5 days a week for 5-6 weeks. Thank heaven for our hi-speedline mode of transportation from NJ to PA. This train will drop me off 1 block from the hospital for the radiation, and only costs $4.25 round trip. This last week when I've had to park each time, the parking fees were $10-15 each time. I look at this radiation as being closer to the end, which I am trying to find out when that will be.
After this consultation, Lauren and I were off to the 4th floor for the blood transfusion. Again a nurse tried 3 times to get some blood to take it to the lab to find my blood type for transfusion. A nurse tried my port, but it was too swollen. They called interventional radiation (the port people) to see if they could access it. They throught it was too bruised to even go there. So finally another nurse was able to get an IV in my hand for the blood sample and the transfusion. After 2 pints of blood, Lauren and I left the hospital at 5:15 p.m. I was just glad the week was over.
This upcoming week I will be getting chemo everyday plus the radiation. I will be speaking to the doctor to determine my upcoming schedule. There is good news, however, to this week. I had told the family that if I have to go through all of this for 6 months, then we're going to have a good family vacation. So, on Wednesday before the CAT scan, I booked a 5 day cruise out of Cape Liberty to Bermuda. Paul and I haven't been there since 1976. So that's something good to look forward to.
Thanks for your cards. Thanks to my neighbor Pat for the beautiful Easter egg cake. It was delicious. Take care everyone and be safe.
The week of April 9-13 did got go so well. Michael and I went to Phila. for 1 day of chemo on Monday, but my hemoglobins (red blood cells) were way down (too anemic). We waited around for them to decide what to do. No chemo that day. Told me I have to have a blood transfusion on Friday. The doctor also said since the nurses were having trouble accessing my port, that a new one would have to be put in. That was scheduled for Tuesday. Went home, made lunch for Mike and I (he was on Easter vacation), he got a movie for us, and we settled in for the afternoon.
Tuesday Mike and I headed over to PA Hosp. for the port replacement operation. What was suppose to be 1.5 hours turned into 3. And I was supposed to be asleep for the operation, turns out I was awake, only numbed on my right side. Before the operation I asked the nurses, "I'm going to be asleep for this again, right?" "Of course, we're just waiting for the doctor." Well, the doctor came in with a resident or student and started talking. I thought OK any minute now I'm going to sleep. Then I kept hearing him telling the resident what he was doing, but I wasn't in pain. Part way through, I yelled "ouch" and then the doctor said, "Give her 20 cc's more of something" and continued on with the operation. I did feel some of the stitches at the end as he described them to his resident. The nurses in the recovery room were amazed how soon I was awake after the operation. I told them I never went to sleep.
When we came home from the port operation, the message on the machine said I was scheduled for a CAT scan on Wednesday at 4:00. Again Mike and I traveled over the Ben Franklin Bridge to yet another test. Mike laughed at me when I had to drink that chalky barium tasting like bananas, so the nurse let him try it. "That's nasty" was his reply. This test, as some of you know isn't that long; you just have to wait for the barium to stay in your body for an hour. But the bad part about this test, was the three times the nurse tried to put an IV in my arm so she could deliver the "contrast" for the test. Finally, another nurse got it on the 4th try. My veins are bad due to genetics, they tell me. Mike and I were on our way home by 5:45 p.m.
Thursday was a good day. No tests but Paul, Michael and I travelled to Phila. for Michael to accept an award from the prestigious Union League of Philadelphia for an essay contest in which he was one of 2 winners. There was supposed to be a copy of his essay on the podium, but someone forgot, and he had to recite it from memory. Thank heavens I asked him to read it minutes before at home so I could see how fast he was going to read it. When we were in the car, he said he forgot his copy but we didn't go back because the gentleman said it would be on the podium. Well, he got more compliments from students and adults on how well he kept his cool and did it off the cuff. This award came with $250 cash. It was worth the trip.
Friday Lauren and I arose early to get my MRI test at 7:15 a.m. in the morning at PA Hospital. That was an easy test just to lie there and this loud machine do its thing. No problem with the contrast. The technologist got it right the first time.
After this test, I met with the radiation onocologist. Seems the chemo doctor and the orthopedic onocologist feel its the right time to start radiation. So after the prelims are taken care of on Monday after my full day of chemo, I will be starting radiation for 15 minutes a day, 5 days a week for 5-6 weeks. Thank heaven for our hi-speedline mode of transportation from NJ to PA. This train will drop me off 1 block from the hospital for the radiation, and only costs $4.25 round trip. This last week when I've had to park each time, the parking fees were $10-15 each time. I look at this radiation as being closer to the end, which I am trying to find out when that will be.
After this consultation, Lauren and I were off to the 4th floor for the blood transfusion. Again a nurse tried 3 times to get some blood to take it to the lab to find my blood type for transfusion. A nurse tried my port, but it was too swollen. They called interventional radiation (the port people) to see if they could access it. They throught it was too bruised to even go there. So finally another nurse was able to get an IV in my hand for the blood sample and the transfusion. After 2 pints of blood, Lauren and I left the hospital at 5:15 p.m. I was just glad the week was over.
This upcoming week I will be getting chemo everyday plus the radiation. I will be speaking to the doctor to determine my upcoming schedule. There is good news, however, to this week. I had told the family that if I have to go through all of this for 6 months, then we're going to have a good family vacation. So, on Wednesday before the CAT scan, I booked a 5 day cruise out of Cape Liberty to Bermuda. Paul and I haven't been there since 1976. So that's something good to look forward to.
Thanks for your cards. Thanks to my neighbor Pat for the beautiful Easter egg cake. It was delicious. Take care everyone and be safe.
Tuesday, April 3, 2007
April 1, 2007
Oh where have I been? I've been to Japan on a porch of a tea house overlooking the hazy hills that fall below me abundant with cherry blossoms and other exotic flowers. April fool. But this is what I imagined when I had my shiastu massage last week when I had another full round of the powerful chemo. I relaxed to the point that I was tired for two days. Or maybe this round was more extensive than I thought.
This time I was more aware of the aches and pains attributed to the chemo and not me. I ate a more balanced meal, salads, fruit, and bran cereals to ward off the pains of constipation. I even went to see Peter Nero in Philadelphia on Saturday with my friend Karen, and wore regular SHOES.
Then I collapsed for the rest of the night. Went to PA Hosp. Sunday morning for a white blood cell shot and Paul and I headed over to Aunt Charlotte's Candy Shoppe in Merchantville to do our annual Easter candy shopping. Will be going for shots everyday this week until Saturday. Hopefully as the doctor ordered on March 26th, I will be able to get an MRI and CAT Scan this week to see the progress of the chemo and to determine how much longer I will have to do this regimen. But as hospitals and insurance companies go, I'm not holding my breath for it to happen this week.
All in all, this second round of power chemo has left me more tired or weakened. I have still been directing the middle school children at St. Rose of Lima for their annual Living Stations of the Cross which Michael and I are co-directors. Our presentations end this week with Good Friday. Michael has been by my side throughout these rehearsals and assists me at a moment's notice to give direction to the children. Of course, the girls just love having a Senior talk to them also.
Thank you to Linda, Carol & Mary for the dinners last week. It was wonderful to have one less thing to worry about after a tiring day.
If you read this blog, try to leave me a note so that I know somebody's reading it. Have a wonderful, healthy and happy Easter.
Fondly, Betsy
This time I was more aware of the aches and pains attributed to the chemo and not me. I ate a more balanced meal, salads, fruit, and bran cereals to ward off the pains of constipation. I even went to see Peter Nero in Philadelphia on Saturday with my friend Karen, and wore regular SHOES.
Then I collapsed for the rest of the night. Went to PA Hosp. Sunday morning for a white blood cell shot and Paul and I headed over to Aunt Charlotte's Candy Shoppe in Merchantville to do our annual Easter candy shopping. Will be going for shots everyday this week until Saturday. Hopefully as the doctor ordered on March 26th, I will be able to get an MRI and CAT Scan this week to see the progress of the chemo and to determine how much longer I will have to do this regimen. But as hospitals and insurance companies go, I'm not holding my breath for it to happen this week.
All in all, this second round of power chemo has left me more tired or weakened. I have still been directing the middle school children at St. Rose of Lima for their annual Living Stations of the Cross which Michael and I are co-directors. Our presentations end this week with Good Friday. Michael has been by my side throughout these rehearsals and assists me at a moment's notice to give direction to the children. Of course, the girls just love having a Senior talk to them also.
Thank you to Linda, Carol & Mary for the dinners last week. It was wonderful to have one less thing to worry about after a tiring day.
If you read this blog, try to leave me a note so that I know somebody's reading it. Have a wonderful, healthy and happy Easter.
Fondly, Betsy
Friday, March 16, 2007
Friday, March 16th
Top of the evening to ya!
Well I'm a day early, but I'm not much for celebrating this year. I had one treatment on Monday all day. Tuesday was just a shot of white blood cells. I went into work for a couple of hours since my two co-workers would be out that day and the bulletin and newsletter needed to get done.
The good news is that the tumor is shrinking. As it shrinks, its supposed to get softer (so says the doctor) which it is doing. There is also a noticeable change in the size of the tumor. I still have to go through two more bouts of week-long chemo before I see the orthropedic onocologist and to take an MRI. If they can shrink the tumor enough with chemo and radiation, if I heard correctly, surgery might not be involved. That would be less evasive on the foot.
This week I probably overdid it by working too much to get everything done. I was exhausted at night and ended up going to bed early. No chemo next week so I can relax and recoup. My head is getting chilly since this colder weather came in today. I did buy a small cap to keep on my head if I don't want to wear my wig.
Thanks for the cards and prayers. I believe in the power of prayer.
Erin Go Bragh!
Well I'm a day early, but I'm not much for celebrating this year. I had one treatment on Monday all day. Tuesday was just a shot of white blood cells. I went into work for a couple of hours since my two co-workers would be out that day and the bulletin and newsletter needed to get done.
The good news is that the tumor is shrinking. As it shrinks, its supposed to get softer (so says the doctor) which it is doing. There is also a noticeable change in the size of the tumor. I still have to go through two more bouts of week-long chemo before I see the orthropedic onocologist and to take an MRI. If they can shrink the tumor enough with chemo and radiation, if I heard correctly, surgery might not be involved. That would be less evasive on the foot.
This week I probably overdid it by working too much to get everything done. I was exhausted at night and ended up going to bed early. No chemo next week so I can relax and recoup. My head is getting chilly since this colder weather came in today. I did buy a small cap to keep on my head if I don't want to wear my wig.
Thanks for the cards and prayers. I believe in the power of prayer.
Erin Go Bragh!
Tuesday, March 13, 2007
Leave a Comment!!
Hi Friends,
This is Jeremy, unofficial "webmaster" for Betsy's blog. Betsy asked that I provide some instruction on leaving comments, so that anyone who wants to can say hello. So, here goes...
IF YOU WANT TO LEAVE A COMMENT FOR BETSY:
1. Scroll to the pink-highlighted "comments" tag at the bottom of each post. Click on it.
2. you will see a pop-up window appear. It will show any comments that have already been left, and will give you a text box to leave your own comment in. Click inside the text box to place the cursor there, and type in a few encouraging thoughts for Betsy! At the end of your message, type your name so Betsy knows who you are.
3. Below the text box, you will see a strange looking series of letters. This is a security code (it stops spammers from leaving unwanted comments). Simply type the letters you see, exactly as they are, into the window provided.
4. Next you will see "choose an identity." Simply click on "anonymous."
5. Find the tag that says "Publish your comment," and click on it. After a moment, your comment will show up online.
5. If this does not work, or if you have questions, please contact me at the following email address: jsanderson@haddonfieldpres.org.
Happy Posting!!
This is Jeremy, unofficial "webmaster" for Betsy's blog. Betsy asked that I provide some instruction on leaving comments, so that anyone who wants to can say hello. So, here goes...
IF YOU WANT TO LEAVE A COMMENT FOR BETSY:
1. Scroll to the pink-highlighted "comments" tag at the bottom of each post. Click on it.
2. you will see a pop-up window appear. It will show any comments that have already been left, and will give you a text box to leave your own comment in. Click inside the text box to place the cursor there, and type in a few encouraging thoughts for Betsy! At the end of your message, type your name so Betsy knows who you are.
3. Below the text box, you will see a strange looking series of letters. This is a security code (it stops spammers from leaving unwanted comments). Simply type the letters you see, exactly as they are, into the window provided.
4. Next you will see "choose an identity." Simply click on "anonymous."
5. Find the tag that says "Publish your comment," and click on it. After a moment, your comment will show up online.
5. If this does not work, or if you have questions, please contact me at the following email address: jsanderson@haddonfieldpres.org.
Happy Posting!!
Friday, March 9, 2007
Friday, March 9
Where have I been? Where have I been? Can we talk?
After a full week of chemo, it was good to relax on the weekend. Lisa took me in Saturday to get a shot of Neupogen to increase my white blood cells which get killed in the process of killing the bad stuff. Of course with Lisa, comes coffee for the effort. We had been doing Dunkin Donuts during the week, and I thought we could splurge on the weekend with Starbucks. I do like chai tea latte. Sunday Paul took me over for the shot. He likes homemade tea; less expensive.
Monday, 3/5 - my BFF Diane took me over to Phila. for another shot (which I have to receive all this week till Saturday). She patiently waited for me even when Septa didn't like her there waiting for me. Afterwards we were both starving, so we had a wonderful full breakfast at IHOP in Audubon. My gosh we stayed there for 2 hours, chatting over 2 full pots of tea, and enjoying eating breakfast out. Once in awhile, you just have to do that. Came home and viewed the Antonio Banderas dance movie. That man is something else, o-o-o-h.
The rest of the week is non-plus except when Ken drove me over on Wednesday for the shot and we got stuck in traffic due to an accident or something else on the bridge. Did a couple of hours each day at work to keep the brain in check. AND to see the many friends who are so concerned with how I'm doing. Its so wonderful to see you all.
The hair's falling out rapidly now. Paul has had to clean the drains twice already. One more time should do it. Britney and I could look like twins.
Have a good day. God Bless.
Betsy
After a full week of chemo, it was good to relax on the weekend. Lisa took me in Saturday to get a shot of Neupogen to increase my white blood cells which get killed in the process of killing the bad stuff. Of course with Lisa, comes coffee for the effort. We had been doing Dunkin Donuts during the week, and I thought we could splurge on the weekend with Starbucks. I do like chai tea latte. Sunday Paul took me over for the shot. He likes homemade tea; less expensive.
Monday, 3/5 - my BFF Diane took me over to Phila. for another shot (which I have to receive all this week till Saturday). She patiently waited for me even when Septa didn't like her there waiting for me. Afterwards we were both starving, so we had a wonderful full breakfast at IHOP in Audubon. My gosh we stayed there for 2 hours, chatting over 2 full pots of tea, and enjoying eating breakfast out. Once in awhile, you just have to do that. Came home and viewed the Antonio Banderas dance movie. That man is something else, o-o-o-h.
The rest of the week is non-plus except when Ken drove me over on Wednesday for the shot and we got stuck in traffic due to an accident or something else on the bridge. Did a couple of hours each day at work to keep the brain in check. AND to see the many friends who are so concerned with how I'm doing. Its so wonderful to see you all.
The hair's falling out rapidly now. Paul has had to clean the drains twice already. One more time should do it. Britney and I could look like twins.
Have a good day. God Bless.
Betsy
Friday, March 2, 2007
Friday, March 2
My first full week of chemo ended today. Lauren spent the day with me. After chemo, we had crepes for lunch. After lunch, my wonderful and blessed hairdresser, Joy, squeezed me into her otherwise tight schedule (even giving up lunch for me) for trim my hair loss. Its falling out not so much in clumps, but just falling out. Unfortunately the grey isn't falling out. So now I have a shorter, albeit grey, hairdo to sport before resorting to the wig. Joy checked out the wig to give it a little snip there to resemble my normal hairdo.
Get to sleep in tomorrow at least until 9:30 when I have to go to PA Hosp. to get a shot to increase the white blood cells that I'm losing along with the bad cells. This will be everyday for one week, and then I'm off for a week.
Have a good day.
Get to sleep in tomorrow at least until 9:30 when I have to go to PA Hosp. to get a shot to increase the white blood cells that I'm losing along with the bad cells. This will be everyday for one week, and then I'm off for a week.
Have a good day.
Thursday, March 1st
Getting down to the end of the week. Today I had scheduled a shiastu massage which is included in my treatment to loosen any tension one might experience. Wayne, the masseuse, was very soft spoken and had nice, soft gentle hands. The background sounds of waves crashing on shore helped me to imagine sitting on a nice soft sands beach in Myrtle Beach just leaving my mind free and clear of everything. When I finished, I thought I had been away for hours. It made me sleepy the rest of the day.
Thursday, March 1st
Getting down to the end of the week. Today I had scheduled a shiastu massage which is included in my treatment to loosen any tension one might experience. Wayne, the masseuse, was very soft spoken and had nice, soft gentle hands. The background sounds of waves crashing on shore helped me to imagine sitting on a nice soft sands beach in Myrtle Beach just leaving my mind free and clear of everything. When I finished, I thought I had been away for hours. It made me sleepy the rest of the day.
Wednesday, February 28, 2007
Wednesday, February 28
Feeling bloated today. I retained about 5 lbs. of liquid. The nurses put me on lasiks (sp. ?) which made the bathroom and me friends. Done by 2:00 pm and Michael was waiting for me at the door.
Lisa made dinner and Mike cleaned up. A relaxing day today.
Gonna work on my newsletter for "On the Bus with Betsy B!" for the Senior Ministry since I can do that sitting down at the computer.
Keep those prayers coming.
Lisa made dinner and Mike cleaned up. A relaxing day today.
Gonna work on my newsletter for "On the Bus with Betsy B!" for the Senior Ministry since I can do that sitting down at the computer.
Keep those prayers coming.
Tuesday, February 27, 2007
Tuesday, February 27
Second day of chemo for the long week. Arrived at 9:00 a.m. Shortly thereafter the chemo began. No problems.
Around 11:00 a.m. I met a young woman who had Ewings Sarcoma like me, but it was in her sinus under her eye. She was pregnant with twins and they had to take the twins early so she could start treatment. Today was her six month check-up and she is cancer free. Her mother told me I'm in the best place to be for treatment, how everyone was so nice AND THEY CERTAINLY ARE.
Neighbor Jeannette picked me up at 1:30 and brought us Baked Ziti for dinner. Hope it tastes as good as it looks (my taste buds I mean). She's a wonderful cook.
Well, I'm ready for a power nap. See y'all.
Around 11:00 a.m. I met a young woman who had Ewings Sarcoma like me, but it was in her sinus under her eye. She was pregnant with twins and they had to take the twins early so she could start treatment. Today was her six month check-up and she is cancer free. Her mother told me I'm in the best place to be for treatment, how everyone was so nice AND THEY CERTAINLY ARE.
Neighbor Jeannette picked me up at 1:30 and brought us Baked Ziti for dinner. Hope it tastes as good as it looks (my taste buds I mean). She's a wonderful cook.
Well, I'm ready for a power nap. See y'all.
February 26 - First Long Day of Chemo
Arrived at 8:30 for my appointment to see my chemo doctor. The nurses accessed my port and took the usual vitals. One of the ports was still hurting by the time I got to the doctor. It felt like the needle was still be inserted or inserted in the wrong place. Dr. Hartner said they would have another nurse reinsert it as he didn't want me to be in any pain whatsoever. He did say that the lump on my foot wouldn't necessarily go down in size, but just get softer.
Came home around 3:30 and just dozed off for awhile. No nausea. Good appetite though, but not all things tasted the same. Good day.
Came home around 3:30 and just dozed off for awhile. No nausea. Good appetite though, but not all things tasted the same. Good day.
Saturday, February 24, 2007
Friday, February 23
When I awoke this day, there was energy abounding in me. I took Michael to school that morning. Upon arriving home, I felt like the old Betsy again. I started straightening up the house, putting away my overnight bag, putting newspapers away, going through the mail, putting things in recycling, putting dishes in the dishwasher, folding throws that go over the chairs and couches. I could bend over without hurting. I ended up being 1/2 hour late for work, but the house looked great. I even felt like putting earrings on for work!
Lauren was coming down from Hoboken on her way to visit friends in VA for the weekend. They were leaving their cars here. I called her and chatted in my silent wispy voice how excited I was to have this energy again. She said, "OK Mom, I'm glad you're feeling better, but its just a house." I was feeling good to want to get things done.
After a very productive day at work, I came home to a quiet, neat house which is relaxing for me. Paul and I went out to Saladworks for dinner and then Sam's Club to get some things for the week ahead for my long week of chemo.
Tomorrow will be wash day. And wig day. My daughter Lisa and I are going to visit some stores to check out the prospects.
Hope everyone has a good weekend. Thanks so much again for the cards, the many prayers and kind words of encouragement to see me through this time of recovery.
Lauren was coming down from Hoboken on her way to visit friends in VA for the weekend. They were leaving their cars here. I called her and chatted in my silent wispy voice how excited I was to have this energy again. She said, "OK Mom, I'm glad you're feeling better, but its just a house." I was feeling good to want to get things done.
After a very productive day at work, I came home to a quiet, neat house which is relaxing for me. Paul and I went out to Saladworks for dinner and then Sam's Club to get some things for the week ahead for my long week of chemo.
Tomorrow will be wash day. And wig day. My daughter Lisa and I are going to visit some stores to check out the prospects.
Hope everyone has a good weekend. Thanks so much again for the cards, the many prayers and kind words of encouragement to see me through this time of recovery.
February 22 - A New Day
Having been given Previcid the previous day, I awoke on Thursday from a terrible interrupted sleep in the hospital. My roommate, an older woman, liked the room warm. When the nurse came in at 2 a.m. for an EKG, I thought I was down in the Bahamas with Anna Nicole's entourage. It was stifling. The nurse said the temperature was 85 and turned it down.
When they came in at 6:00 a.m. to weigh my roommate with the creakiest scale possible in this world, the room was still warm. They checked my vitals and afterward I decided to get up and rinse my mouth and take a walk.
What is this feeling? I felt renewed! No pain! And at the first words that I spoke to the nurse,
NO VOICE. Now many of you know me that I'M not a person of few words, as when I'm feeling good I'm like a parrot chattering away. But NO VOICE. Aagh!
I wasn't allowed to have anything to eat after 12 midnight since I was having two tests that morning. By 9:30 a.m. the great wheelchair assistant took me to the basement for a stress test and the MUG scan. There was a woman there who used to come to South Jersey when she was little. We started conversing and I thought my voice was starting to come back. By the time she and I were done with our tests, I guess it started going downhill again.
Back to my room at 1:30 p.m., I was now allowed to eat. All the nurses brought to me was 2 packs of saltines, 1 graham cracker and 2 small cups of cranberry juice. Not having anything since dinner the night before, I devoured them as well as the cookies Mike and Lisa brought over the night before when they brought my overnight bag to me. They couldn't get me a lunch tray!
By 3:15 pm after seeing the cardiologist and saying that my pains were not heart related, that all the tests came back negative, that the blood flows perfectly fine through my heart, that my heart is in good shape, I was allowed to go home. Then Dr. Hartner (chemo doc) came and said that my heart was in good shape to take the chemo, that the pains were probably intestinal, I was allowed to go home. Some other doctor whom I had seen in the ER, but never got his name nor understood him most of the time, came and said I could go home.
Paul called at 4:00 pm (when he gets off work) and wanted to know when I was leaving there. He had an errand to run. I told him to do the errand and when I thought it was getting close, I'd call. By 6 pm all but the nurse had signed the release form. Low and behold, the dinner plate arrived. There was no way I was leaving this hospital without eating my dinner since I didn't get breakfast and lunch. Paul and Michael arrived shortly thereafter and watched me eat my one meal of the day. Within the next 30 minutes, the nurse and I concluded our relationship.
I was on my way home.
When they came in at 6:00 a.m. to weigh my roommate with the creakiest scale possible in this world, the room was still warm. They checked my vitals and afterward I decided to get up and rinse my mouth and take a walk.
What is this feeling? I felt renewed! No pain! And at the first words that I spoke to the nurse,
NO VOICE. Now many of you know me that I'M not a person of few words, as when I'm feeling good I'm like a parrot chattering away. But NO VOICE. Aagh!
I wasn't allowed to have anything to eat after 12 midnight since I was having two tests that morning. By 9:30 a.m. the great wheelchair assistant took me to the basement for a stress test and the MUG scan. There was a woman there who used to come to South Jersey when she was little. We started conversing and I thought my voice was starting to come back. By the time she and I were done with our tests, I guess it started going downhill again.
Back to my room at 1:30 p.m., I was now allowed to eat. All the nurses brought to me was 2 packs of saltines, 1 graham cracker and 2 small cups of cranberry juice. Not having anything since dinner the night before, I devoured them as well as the cookies Mike and Lisa brought over the night before when they brought my overnight bag to me. They couldn't get me a lunch tray!
By 3:15 pm after seeing the cardiologist and saying that my pains were not heart related, that all the tests came back negative, that the blood flows perfectly fine through my heart, that my heart is in good shape, I was allowed to go home. Then Dr. Hartner (chemo doc) came and said that my heart was in good shape to take the chemo, that the pains were probably intestinal, I was allowed to go home. Some other doctor whom I had seen in the ER, but never got his name nor understood him most of the time, came and said I could go home.
Paul called at 4:00 pm (when he gets off work) and wanted to know when I was leaving there. He had an errand to run. I told him to do the errand and when I thought it was getting close, I'd call. By 6 pm all but the nurse had signed the release form. Low and behold, the dinner plate arrived. There was no way I was leaving this hospital without eating my dinner since I didn't get breakfast and lunch. Paul and Michael arrived shortly thereafter and watched me eat my one meal of the day. Within the next 30 minutes, the nurse and I concluded our relationship.
I was on my way home.
Feb. 21 - A bend in the road
Sorry I haven't posted anything since Feb. 15, but things were going somewhat placid till this past Tuesday, Feb. 20.
Although the previous Saturday I did have stomach pains which I thought were attributable to (a) hunger (didn't feel like eating much); (b) constipation or just a slight feeling of just not feeling quite up to par, I brushed it off and just stayed around home, not even feeling like doing my cross-stitch.
Went to work on Monday and Tuesday (I was tired of the house by then), I finished up Tuesday with a rush to get the bi-monthly newsletter done before the committee comes in on Wednesday morning to mail it. Later that night-- when I was attending the Fashion Show for Paul VI at Adelphia's to catch Michael's modeling debut -- with Lauren, my niece Allison, and my brother sitting in for my sister-in-law Lori, who became sick that day and couldn't attend, I started to getting a dull ache in my chest just below the breast bone.
It seemed to subside after eating dinner. During the time of the modeling, the pain started up again and thought it was indigestion. Took several TUMS which I had on hand, but that didn't seem to help. Patiently waiting through the awarding of 106 Chinese Auction baskets with no winning of any of them at our table, the tightening didn't go away. Finally when our table won the 50/50 of $675. (an easier package to carry out the door), it was time to go home.
This tightening continued on even when I went to bed. By 1:00 a.m. it had me up. I took Mylanta, which let me sleep for maybe an hour more, but the pains started again in the center of my chest and going outward and down the center of my body and outward.
When you are admitted for chemo at Pennsylvania Hospital, you are given an 800 number for any type of pain. By this time I got Paul up and he called the 800 number. The doctor thought that the pains in my back and chest might have been caused by the tumor moving. I looked down at my foot and by golly, it was still there. He had said that since I wasn't getting any sleep because of the pains, to go to the emergency section of PA hospital. Time - 4:00 a.m.
Once there, they hooked me up to an IV through the port in my chest used for administering the chemo. By 8:00 a.m through a series of usual tests, it was determined by the ER doctor that I wasn't or didn't have a heart attack, but before I could go a cardiologist had to see me. Well, let me tell you they won't have a heart attack at the rate that they move. When we notified Dr. Hartner, my chemo doctor, that I was in the emergency room and unable to make an appointment for a MUG scan that morning, he was over in 5 minutes. Wonderful, quiet man. He checked the records and decided to keep me overnight for observation.
Finally after lunch the cardiologist came and gave me the news that I didn't have a heart attack, but that I would be monitored for 24 hours since I was being admitted for observation.
Still in the ER, the admissions people came over and got their information. Earlier in the morning, the nurse gave me the Maalox cocktail with some numbing substance in it to help you feel better. That lasted a couple of hours and then the dull ache started again. When a surprise lunch came in the ER, swallowing a little hurt. By 2 pm with the lunch over (still in the ER), Paul left to go home since Wednesday is his day to pick up his father from dialysis. Not a very talkative person and both tired from the morning, I was happy to be left alone to sleep (but whoever sleeps in the hospital, let alone the ER).
By 4:00 pm (12 hours later), I was moved to a room.
Although the previous Saturday I did have stomach pains which I thought were attributable to (a) hunger (didn't feel like eating much); (b) constipation or just a slight feeling of just not feeling quite up to par, I brushed it off and just stayed around home, not even feeling like doing my cross-stitch.
Went to work on Monday and Tuesday (I was tired of the house by then), I finished up Tuesday with a rush to get the bi-monthly newsletter done before the committee comes in on Wednesday morning to mail it. Later that night-- when I was attending the Fashion Show for Paul VI at Adelphia's to catch Michael's modeling debut -- with Lauren, my niece Allison, and my brother sitting in for my sister-in-law Lori, who became sick that day and couldn't attend, I started to getting a dull ache in my chest just below the breast bone.
It seemed to subside after eating dinner. During the time of the modeling, the pain started up again and thought it was indigestion. Took several TUMS which I had on hand, but that didn't seem to help. Patiently waiting through the awarding of 106 Chinese Auction baskets with no winning of any of them at our table, the tightening didn't go away. Finally when our table won the 50/50 of $675. (an easier package to carry out the door), it was time to go home.
This tightening continued on even when I went to bed. By 1:00 a.m. it had me up. I took Mylanta, which let me sleep for maybe an hour more, but the pains started again in the center of my chest and going outward and down the center of my body and outward.
When you are admitted for chemo at Pennsylvania Hospital, you are given an 800 number for any type of pain. By this time I got Paul up and he called the 800 number. The doctor thought that the pains in my back and chest might have been caused by the tumor moving. I looked down at my foot and by golly, it was still there. He had said that since I wasn't getting any sleep because of the pains, to go to the emergency section of PA hospital. Time - 4:00 a.m.
Once there, they hooked me up to an IV through the port in my chest used for administering the chemo. By 8:00 a.m through a series of usual tests, it was determined by the ER doctor that I wasn't or didn't have a heart attack, but before I could go a cardiologist had to see me. Well, let me tell you they won't have a heart attack at the rate that they move. When we notified Dr. Hartner, my chemo doctor, that I was in the emergency room and unable to make an appointment for a MUG scan that morning, he was over in 5 minutes. Wonderful, quiet man. He checked the records and decided to keep me overnight for observation.
Finally after lunch the cardiologist came and gave me the news that I didn't have a heart attack, but that I would be monitored for 24 hours since I was being admitted for observation.
Still in the ER, the admissions people came over and got their information. Earlier in the morning, the nurse gave me the Maalox cocktail with some numbing substance in it to help you feel better. That lasted a couple of hours and then the dull ache started again. When a surprise lunch came in the ER, swallowing a little hurt. By 2 pm with the lunch over (still in the ER), Paul left to go home since Wednesday is his day to pick up his father from dialysis. Not a very talkative person and both tired from the morning, I was happy to be left alone to sleep (but whoever sleeps in the hospital, let alone the ER).
By 4:00 pm (12 hours later), I was moved to a room.
Thursday, February 15, 2007
February 15
No chemo today. Was able to go to work for a few hours and it was great to use my brain again. Many people stopped by to say hello and see how I was feeling.
Your thoughts and prayers keep me positive throughout this recovery. Thanks .
Your thoughts and prayers keep me positive throughout this recovery. Thanks .
Wednesday, February 14, 2007
Day 3
No chemo today. Mike had no school because of the ice and snow from yesterday. Lounged around in pajamas and slept.
I did, however, have to go back to the unit to get a shot to build up more white blood cells since the chemo is destroying the good cells as well as the bad. Mike drove over with me and THAT shot only took a minute or two, but cost us $7 for parking and $1 tip. I gotta find some meters for that quick visit.
Next visit to the hospital is not till the 21st when I have to go for another scan as a follow-up to the ECHO CARDIOGRAM that was taken on Friday.
Echo cardiogram -recording of the position and motion of the heart walls or internal structures of the heart by the echo obtained from beams of ultrasonic waves directed through the chest wall.
I did, however, have to go back to the unit to get a shot to build up more white blood cells since the chemo is destroying the good cells as well as the bad. Mike drove over with me and THAT shot only took a minute or two, but cost us $7 for parking and $1 tip. I gotta find some meters for that quick visit.
Next visit to the hospital is not till the 21st when I have to go for another scan as a follow-up to the ECHO CARDIOGRAM that was taken on Friday.
Echo cardiogram -recording of the position and motion of the heart walls or internal structures of the heart by the echo obtained from beams of ultrasonic waves directed through the chest wall.
Day 2
Lisa, my middle child, brought me over for what supposed to be 20 minutes. I have now learned that when they say a time for your chemo, that is how long the medicine takes to give me, not the time when I'll be there. I had to wait for my vitals to be taken, and then 30 minutes later, the medicines started. Unfortuantely, by now Lisa had to leave for work and I had to come upon one of my many friends who volunteered to drive to take me home. My neighbor Jeanette, came and was not real thrilled about driving over the Ben Franklin Bridge in the sleeting weather that day. She said, "Betsy, I'll be glad to do this again, but not on a snowy day."
The nurses are great and caring. I talked to a retired doctor today who visits the patients now that he has more time. He used to work in the unit. He had some very uplifting information that everything was going to be okay and explained about the radiation that will be forthcoming when the chemo is done.
Cat Scan - Had this test on Friday, February 9 and had to drink 3 glasses of barium for a 3 minute test. My brother Denny took me over and stayed with me. Today we got the results that none of the cancer has spread to other parts of my body. A RED LETTER DAY
The nurses are great and caring. I talked to a retired doctor today who visits the patients now that he has more time. He used to work in the unit. He had some very uplifting information that everything was going to be okay and explained about the radiation that will be forthcoming when the chemo is done.
Cat Scan - Had this test on Friday, February 9 and had to drink 3 glasses of barium for a 3 minute test. My brother Denny took me over and stayed with me. Today we got the results that none of the cancer has spread to other parts of my body. A RED LETTER DAY
Day 1
Day 1
Was much longer than anticipated. Lauren, my eldest, took the day off to come with me. All the information given about the drugs, how to check in, was overwhelming to say the least. Just when we thought we could leave to get something to eat, then they would give me another medicine that lasted another hour. Then the anti-nausea medicines were given. Finally, we left there at 4:45 from being there at 10:00 a.m.
So far so good. I was just tired from being there that long with nothing to do.
Was much longer than anticipated. Lauren, my eldest, took the day off to come with me. All the information given about the drugs, how to check in, was overwhelming to say the least. Just when we thought we could leave to get something to eat, then they would give me another medicine that lasted another hour. Then the anti-nausea medicines were given. Finally, we left there at 4:45 from being there at 10:00 a.m.
So far so good. I was just tired from being there that long with nothing to do.
Tuesday, February 13, 2007
Welcome to my Blog!
Hi, I'm Betsy B, and this blog exists to communicate with all my friends and family as we journey together towards a full recovery from my "frustrating footsie"!You can check here for updates on how I'm doing, and to leave notes and thoughts of encouragement.
What started out as a small lump on the bottom of my arch on my right foot at the end of summer, has surely turned into a "frustrating footie." While we waited to see if the lump was just fat from backless sandals, it never went away when I started wearing shoes and sneakers. After X-rays revealed nothing substanstive, it was suggested that I get an MRI, which between primary physician, podiatrist and my insurance company, took way longer than expected.
Two days after Christmas, I made a mad push to get this thing moving. After much whining and crying, I got my MRI. A week later it revealed a malignant tumor. The terror of losing a foot or even scarier for me since cancer ran in my family, that it could spread to the rest of my body. Immediately the podiatrist found the best orthopedic oncologist for me to go to in Philadelphia. Three days later I was in his office and he said it look suspicious. A week later the biopsy was done and it took ten frustrating days to get the results. Two hours later I was in the orthopedic oncologist office telling me they were wanted me to see a hematologist to get the chemo started. They decided that it was better to shrink the tumor through chemo to alleviate the loss of muscle and tissue from the foot, then do radiation, and then remove the tumor.
Well this really threw me for a loop. Wednesday, Feb. 7 saw the chemo doctor and overwhelmingly explained everything from nausea to lack of hair. Thursday, Feb. 8 I was back at the hospital getting a port put in for the chemo. Friday was my testing day and my brother took me over to get the echo cardiogram and CAT scan as explained below.
So now this is really my blog begins.
Thanks everyone for your support, and keep those prayers coming!
Love,
Betsy
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